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Having a complex condition doesn't always mean giving up a full, active life. There are many great organizations dedicated to helping support those living with Immune Deficiency and other illnesses. The references are provided as resource for finding information on your illness, treatment options, support groups, clinical trials and more. The information is not intended to be used in lieu of medical advice from a qualified physician.
Support Links For Those Living With Immune Deficiency.
The following organizations provide more information on Immune Deficiency and support for people living with Immune Deficiency.
Immune Deficiency Foundation
Medline Plus - A service of the U.S. National Library of Medicine
ImmuneDisease.com
International Patient Organization for Patients with Primary Immunodefficiencies
National Primary Immunodeficiency Resource Center
Jeffrey Modell Foundation
Primary Immunodeficiency Association
National Marrow Donor Program
Discussion Forms
Primary Immunodeficiency Association
National Primary Immunodeficiency Resource Center
Severe combined Immunodeficiency
Resource & Support Materials:
Weekly Medication Schedule
Clinical Trials and Medical Research
A clinical trial is a rigorously controlled test of a new drug or a new invasive medical device on human subjects. In the United States, it is conducted under the direction of the FDA before being made available for general clinical use. If you're looking for up-to-date information about federally and privately supported Immune Deficiency clinical research studies, ClinicalTrials.gov helps link patients living with Immune Deficiency to medical research.
Financial Support For People Living With Immune Deficiency.
When you're living with Immune Deficiency, the expense of on-going treatment can sometimes become more than you'd planned. There are places to turn for financial support.
Medicare Prescription Drug Coverage
Starting January 1, 2006, Medicare will offer new prescription drug coverage. This new coverage can provide help with your drug costs, no matter how you pay for your drugs today.
Everyone with Medicare can join a drug plan to get this coverage. And, everyone with Medicare must make a decision about his or her drug coverage. That's why it's important that you read The Medicare Handbook to learn the basics about how the new drug coverage can work for you, based on the type of coverage you currently have. Pay special attention to the information in Section 6 of the handbook about Medicare's new prescription drug coverage.
Source: The official U.S. Government Site for People with Medicare Visit the official Medicare website for current information regarding the Medicare Prescription Drug Benefit and information that will help you make a decision on your new Medicare coverage.
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